Person Centred Care Research Cluster

The Person-Centred Care (PCC) cluster undertakes research which directly impacts the care of individuals and their families. The PCC movement is a global phenomenon which puts the person at the centre of all healthcare decisions (rather than the clinician or process), leading to fundamental changes in service delivery. In the UK, this changing perception has resulted in publications such as ‘NHS Long Term Plan’ (2019) which sets out more holistic models of healthcare that consider the whole person, not just the presenting symptom. Our research directly links to this movement, and asks ‘what matters to you’?  

Our aims

The aim of the Person-Centred Care (PCC) research cluster is to find out ‘what matters’ to individuals receiving care and their families, so that health and social care services can be improved accordingly. As such, our research focuses on individuals' experiences and perceptions of health and social care services. Our researchers use qualitative data collection methods such as focus groups, semi-structured interviews and surveys to capture individuals' experiences, alongside more quantitative data from Patient Reported Outcome Measures (PROMs) and Patient Reported Experience Measures (PREMs) to draw conclusions about what is important to individuals and their families or carers and make recommendations for change that support this.

There are lots of opportunities for collaboration with the Person-Centred Care Research Cluster team. We have experience of working with a wider range of organisations, such as NHS Trusts, independent health and social care providers, third-sector organisations, charities, Health Education England and NHS England.

Research Cluster Lead

The Person-Centred Care research cluster lead is Dr Emma Hyde. Emma’s extensive research into person-centred care began in her own profession of diagnostic radiography, with a large-scale funded research project to define informed measures of patient-centred care in diagnostic radiography. Emma now works on a wide range of person-centred care related projects across health and social care and is the Clinical Director of the Personalised Care Institute, which is funded by NHS England. 

‘I am passionate about person-centred care research, as it provides a way to directly influence the quality of care delivered in health and social care services and ensure that we put ‘what matters to you’ at the heart of service delivery.’ Dr Emma Hyde

Emma smiling wearing red lipstick
Dr Emma Hyde

Dr Emma Hyde is an Associate Professor in Learning, Teaching and Pedagogy at the University of Derby. Emma is a qualified HCPC registered Diagnostic Radiographer. Before joining the University in 2006...

Research Cluster Team

Dr Lisa Ledger - Lisa is an Occupational Therapist with a keen interest in pressure ulcer prevention, posture and seating, and is currently Head of the Occupational Therapy, Prosthetics & Orthotics discipline area. Lisa is a member of the National Wound Care Strategy Programme (NWCSP). This is part of an NHSi workstream that is writing the standards and guidance around pressure ulcer(s) and wound care. Lisa’s current research focusses on the importance of shared decision making with patients about pressure ulcer prevention.

Dr Mark Faghy is an Associate Professor of Respiratory Physiology. Mark has a particular interest in Long COVID, and Respiratory & Chronic Conditions. Mark’s current research focusses on the importance of shared decision making with patients about Long COVID treatment.

Professor Dawn Forman’s research is focussed on academic leadership and governance, interprofessional collaboration, and person-centred care. As well as her role at University of Derby Dawn is an Adjunct Professor at Auckland University of Technology and Curtin University Australia. 

Dr Andrew Dainty’s research areas focussed on trainees and students in health and social care, and their impact upon care and professional standards. Andrew has also carried out research linked to bowel conditions and medically unexplained symptoms, with a patient focus. 

Dr Gerri Mortimore is an Associate Professor in Advanced Clinical Practice. Gerri’s research is focussed on liver disease such as cirrhosis, hepatitis, fatty liver disease, hemochromatosis and much more.  Gerri’s current research focusses on the importance of shared decision making with patients about their treatment for liver disease. 

Jessica Jackson is a qualified mental health nurse and health visitor. Her specialist areas of research include Breastfeeding support and healthy packed lunches for schoolchildren. Jessica’s current research focusses on the importance of personalised care and support for parents about breastfeeding. 

Andy Rogers is a Medical Physicist and Visiting Research Fellow. His research focuses on optimisation of staff and patient radiation exposure during projection radiography (x-ray) procedures. Andy’s current research focusses on the importance of image optimisation and radiation dose reduction in spinal imaging. 

Our research

Defining informed measures of patient-centred care in diagnostic radiography; the international perspective 

The focus on patient experience and patient centred care (PCC) has gained increasing emphasis in the UK over the last 10 years, since the publication of the Francis Report in 2014, which subsequently heavily influenced NHS policies such as NHS Five Year Forward View (2014) and NHS Long Term Plan (2019). Organisations such as Picker Foundation, Health Foundation, Nuffield Trust and Health Education England have all published documents stressing the importance of patient centred approaches to care, which meet individuals’ needs.

Recent research published by Dr Emma Hyde, has highlighted the complexity of providing patient centred care within the profession of Diagnostic Radiography, and offered a model for PCC focussed on care and communication. The model highlights the importance of the use of ‘Hello my name is…’, the role of body language in PCC, and the way that small gestures such as provision of a choice of clothing or the offer of a blanket can change patient’s perceptions of the care that they receive during a radiographic examination. However, this research was based on the responses of UK participants, and the applicability of model for radiographers outside of the UK is unknown. This research project will seek to define informed measures of PCC within a sample of the international radiography community, and answer the following questions: 

  1. Does the term patient centred care (PCC) mean the same thing to service users, radiography managers, clinical radiographers, radiography educators and pre-registration students?
  2. What observable activities do these groups believe demonstrates PCC in radiography?
  3. Does PCC have the same meaning in different countries, with different health care systems, and different cultures and beliefs?

Join us

If you would like to find out more about the research in this area, join the research cluster or are applying for a PhD in this area, please contact Dr Emma Hyde for more information.

Publications

  • Ashton, REM., Phillips, B, E., Faghy, M, A., (In Press)., The Acute and Chronic Implications of the COVID-19 Virus on the Cardiovascular System in Adults: A Systematic Review. Progress in Cardiovascular Disease. IF: 11.278. DOI: 
  • Pronk, NP., Mabry, P., Bond, S., Arena, R., Faghy, MA., (2022), Systems Science Approaches to Cardiovascular Disease Prevention and Management in the Era of COVID-19: A Humpty-Dumpty Dilemma? Progress in Cardiovascular Disease. IF: 11.278. DOI: https://doi.org/10.1016/j.pcad.2022.12.003 
  • McEwan, K., Collett, H., Nairnm J., Bird, J., Faghy, M, A., Pfeifer, E., Jackson, J., Cook, C., Bond, A., (2022)., A pilot study assessing the feasibility and impact of practising online Forest bathing to improve anxiety, rumination, social connection and Long-COVID symptoms in those with Long-COVID. International Journal of Environmental Research and Public Health., 19(17)., IF: 4.614 DOI: https://doi.org/10.3390/ijerph192214905  
  • Faghy, M, A., Arena, R., Hills, A, P., Yates, J., Vermeesch, A., Franklin, B., Popovic, D., Strierer, L., Lavie, C, J., Smith, A., (2022)., The Response to the Covid-19 Pandemic: With Hindsight What Lessons Can We Learn?. Progress in Cardiovascular Disease. IF: 11.278. DOI: https://doi.org/10.1016/j.pcad.2022.11.019    
  • Faghy, M, A., Owen, R., Thomas, C., Yates, J., Ferraro, FV., Skipper, L., Barley McMullen, Brown, D., Arena, R., Ashton, REM., (2022), Is Long COVID the next global health crisis? Journal of Global Health. IF: 7.664. DOI: 10.7189/jogh.12.03067  
  • Forman, D., Jones, M. and Thistlethwaite, J. (Eds) (2020). Sustainability and Interprofessional Collaboration, Palgrave Macmillan. Hampshire  
  • Babicova, I. Cross, A. Forman, D. Hughes, J. Hoti, K. (2021) Validation and Evaluation of Psychometric Properties of For Peer Review PainChek ®: An Electronic Pain Assessment Tool for People with Moderate-to-Severe Dementia. Dementia: the international journal of social research and practice (under consideration)
  • Kotera Y, Cockerill V, Chircop JGE, Forman D. Mental health shame, self-compassion and sleep in UK nursing students: Complete mediation of self-compassion in sleep and mental health. Nurs Open. 2020;00:1–11.
  • O’Keefe, M., Forman D., Moran M., & Steketee C. (2020) Governance options for effective interprofessional education: Exposing the gap between education and healthcare services, Medical Teacher, DOI: 10.1080/0142159X.2020.1795096
  • Shoesmith, W., Chua, S.H., Giridharan, B. et al. Creation of consensus recommendations for collaborative practice in the Malaysian psychiatric system: a modified Delphi study. Int J Ment Health Syst 14, 45 (2020). https://doi.org/10.1186/s13033-020-00374-7
  • Hyde E & Hardy M (2021) Delivering informed measures of patient centred care in medical imaging: What is the international perspective? Journal of Medical Imaging and Radiation Sciences. Article in Press. DOI: https://doi.org/10.1016/j.jmir.2021.05.014  
  • Hyde E & Hardy M (2021) Delivering patient centred care (Part 3): Perceptions of student radiographers and radiography academics. Radiography. 27 (3), pp803-810 DOI: https://doi.org/10.1016/j.radi.2020.12.013
  • Hyde E & Hardy M (2021) Delivering patient centred care (Part 2): a qualitative study of the perceptions of service users and deliverers. Radiography. 27 (2), pp322-331. DOI: https://doi.org/10.1016/j.radi.2020.09.008  
  • Hyde E & Hardy M (2021) Delivering patient centred care (Part 1): Perceptions of service users and service deliverers. Radiography 27 (1), pp8-13 DOI: https://doi.org/10.1016/j.radi.2020.04.015
  • Jackson, J., Rhodes, C. and Kotera, Y. 2022. Parents’ attitudes towards conversations with their young children about sex: A cross-sectional study. British Journal of Child Health. 3 (4). https://doi.org/10.12968/chhe.2022.3.4.183
  • Jackson, J., Safari, R. and Hallam, J. 2022. A narrative synthesis using the ecological systems theory for understanding a woman’s ability to continue breastfeeding. International Journal of Health Promotion and Education. https://doi.org/10.1080/14635240.2022.2098162
  • Jackson, J & Hallam, J (2021) ‘It’s quite a taboo subject’: an investigation of mother’s experiences of breastfeeding beyond infancy and the challenges they face, Women & Health, DOI: 10.1080/03630242.2021.1938790
  • Jackson, J., Roscoe, C., Mourton, N. (2021) Physical activity: understanding and addressing inequalities. Public Health England. London. Available at: Physical activity: understanding and addressing inequalities - GOV.UK (www.gov.uk)
  • Ledger L and Morris L (2021) Pressure ulcer prevention and use of patient information leaflets. Journal of Community Nursing 35 (5): 42 -46.  
  • Ledger L, Worsley P, Hope J and Schoonhoven L (2020) Patient involvement in pressure ulcer prevention and adherence to prevention strategies: An integrative review. International Journal of Nursing Studies IJNS 101 (2020) 103449. doi.org/10.1016/j.ijnurstu.2019.103449  
  • Read, H., Mortimore, G. (2022). Acute onset low back pain leading to a diagnosis of cauda equina syndrome, Practice Nursing 33 (2), 2-7
  • Mortimore, G. (2021/2022). New Year, New lifestyle (editorial), Gastrointestinal Nursing 19 (supp 10), S3 
    Farrington, L., Mortimore, G. (2021). Chronic limb ischaemia: case study and clinical literature review, British Journal of Nursing 30 (14), 846-851
  • Gonzanga, E. R., Guiance, I.R., Henriquez, R., Mortimore, G., Freeman, J., (2021). The Role of the Liver in Iron Homeostasis and What Goes Wrong?, Journal of Renal and Hepatic Disorders 5 (2), 26-33 (open access)
  • Mortimore, G., Woodward, A. (2021). Genetic hemochromatosis: A common disorder but are General Practitioners still unaware? A qualitative study, Journal of Hepatology. 75, S679-S680 Impact factor 25.083
  • Mortimore, G., Reynolds, J., Forman, D., Brannigan, C., Mitchell, K. (2021). From expert to advanced clinical practitioner and beyond, British Journal of Nursing 30 (11), 656-659 
    Reynolds, J., Mortimore, G., (2021). Clinical supervision for advanced practitioners, British Journal of Nursing 30 (7), 422-424
  • Dexter, J., Mortimore, G. (2021). The management of urinary tract infections in older patients within an urgent care out-of-hours setting, British Journal of Nursing 30 (6), 334-342 
    Reynolds, J., Mortimore, G. (2021). Transitioning to an ACP: a challenging journey with tribulations and rewards, British Journal of Nursing 30 (3), 166-166
  • Reynolds, J., Mortimore, G. (2021). The ascent to advanced practice: challenges, support and opportunities, British Journal of Nursing 30 (2), 106-108
  • Leighton P, …, Rogers A, et al. Prescribing and using vitiligo treatments – lessons from a nested Process Evaluation within the Hi-Light Vitiligo Randomised Controlled Trial 2022 Clinical and Experimental Dermatology doi:10.1111/ced.15193  
  • Coates A & Rogers A. A comparison of two peak skin dose metrics calculated by patient dose management systems: Implications for clinical management. 2021 British Journal of Radiology doi:10.1259/bjr.20200924   
  • “Quality Assurance and Characterisation of NB-UVB Devices for Use at Home: Lessons from the Hi-Light Vitiligo Trial” Rogers A, British Journal of Dermatology 2020 DOI : http://dx.doi.org/10.1111/bjd.19630
  • “Randomised controlled trial of topical corticosteroid and home-based narrowband UVB for active and limited vitiligo – results of the HI-Light Vitiligo trial” Batchelor J, Thomas K,  Rogers A …. British Journal of Dermatology 2020 DOI: 10.1111/bjd.19592